Well Hey there, Bloggy Long Time No See

So…Hi, y’all.  🙂  It’s been a while.

So many things have happened since the last time we met.

Mostly bad. But not all. Hey, you. 😉

Let’s see…first, turns out that after a couple of years of believing I was celiac…and making all the required changes…I am indeed NOT celiac. I won’t waste time ranting or whining about the misdiagnosis but my PSA for today is…if you ever think you or esp your child might be celiac…get the biopsy.  We relied on blood testing for my diagnosis (because of my blood thinner issue) but if I had to do it over again I’d definitely risk the bleeding for a biopsy.  It’s crazy expensive…not to mention time consuming…to switch to a gluten-free life style.  Better to be absolutely sure than to waste all that time / money / energy if you don’t need to do it.

After I found out about the misdiagnosis I eased back into regular eating. It went surprisingly well.  My 3+ year iron struggle improved a lot.  I guess because I was eating real bread / cereal / ect…stuff that is fortified with extra vitamins and minerals.

Then in July something horrible started happening.

****Gross Pic Warning****

arm sore1

First ‘blood spot’ showed up last month.

arm sore5

Then a few more.

arm7

Then worse.

chest

And then today this grapefruit size ‘thing’ on my side.

I’m seeing a hematologist, a new rheumatologist and my normal dr.  My regular Dr initially thought it was petechiae.  Sent me to the hematologist who said it wasn’t petechiae but bruising.  I haven’t bumped myself in any of these areas prior to these things showing up.  I just don’t get it.  I feel like I’m bleeding to death or something.  It’s so scary.  I can’t get into the rheumatologist until next Monday so I’m left here worried for days still.  My iron has plummeted again but my blood thinner is barely in the required range (between 2 – 3) so it’s not high at all.  If it was at least that might explain the weird bruising.

Have y’all seen anything like this before?  What did it turn out to be?

Anyway…there’s a lot to catch up on but I’ll end here for now.  I’m going to try to get back to blogging if for nothing else than to get stuff out of my head.  Haven’t been doing much cooking…but I’m also wanting to try to get back into that for the same reason.  The kitchen has always been my creative escape.  I think I need that right now.

See ya soon.  🙂